This week 52 Lives would like to help a 10 year old girl called Millie, from Connah’s Quay in North Wales.
Millie suffers from Lissencephaly, a rare and incurable brain disorder which has left her unable to walk and talk. She has extremely painful joint and muscle spasms daily and is very stiff in all of her limbs.
Millie is cared for full-time by her mum, Debbie, who is a single parent.
Two years ago, Millie also developed pancreatitis, and has an attack about every 4 months. Debbie described these attacks as horrifically painful and absolutely heartbreaking to watch.
Doctors said Millie would be unlikely to live beyond her fifth birthday, but this amazing little girl is defying all the odds.
Since she was a baby, hydrotherapy sessions have made a huge difference to Millie. But as she has gotten older, it has become increasingly difficult for her to attend the sessions, as she is often unwell.
In desperation, Debbie started a very long and difficult fundraising journey to raise money for a hydrotherapy pool for their garden. She raised enough to start the build, and with the support of some kind businesses, including Jackie and Darrell at Flintshire Crane Hire Limited, it is almost complete.
Debbie is reliant on benefits and money is incredibly tight. She doesn’t have enough for the last essential pieces of equipment she needs – mainly a hoist and a shower trolley, which will enable her to get Millie in and out of the pool and shower her afterwards.
Debbie has been incredible, but she is quite simply running out of energy. She devotes every bit of herself to making life as pain-free as possible for her little girl, but she really could do with a bit of help. She struggles daily to make ends meet and they have very little. We would love to help make their lives a little bit easier.