52 Lives

#382 Connie

Request: Donations / Gifts for their bedroom / Kind messages

This week, we’d like to help a 7 year old girl called Connie and her big brother Elliot.

Connie has daily seizures and is losing the ability to walk and talk. She was diagnosed with Battens Disease four years ago. When she was diagnosed, her parents were told that most children with the condition don’t reach their teenage years. There is no cure, but Connie has been having an enzyme treatment which can help to slow the onset of the disease.

Connie lives with her mum, Caroline, who cares for her full time, and her 16 year old brother. It has been a very tough few years for the family. Caroline lost her dad to Covid in 2021, Elliot went through a tough time, and then their house was burgled.

They have been living in an old property for the past 10 years that was impossible to adapt. So they have just had to move into an adapted council house that is more suitable for Connie’s needs.

Connie and Elliot now have their own bedrooms for the first time ever – but they are bare.

With your help, we’d like to decorate and furnish Connie and Elliot’s bedrooms for them. Although she isn’t aware of this yet, we’d also like to do the same for Caroline. She has a lot of deal with, and really deserves a quiet space of her own. 

What We Need

1. Donations: You can donate online or by text using the details below. 100% of what you give will be used to help them.

2. Gifts from a wishlist: We've set up a wishlist filled with some things for their home. To buy a gift from the wishlist, please click the link below. Your gift will be sent directly to the family (Just tick 'this is a gift' and choose the 'gift registry address' when you check out.)

3. Kind messages: To send a kind message for the family, please either write your message in the form below (your contact details will not be shared) or you can post a message to: 52 Lives (Life 282), PO Box 3154, Reading, RG1 9AT

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(if you are sending a message of support for the person we’re helping, there is no need to fill in your email address or telephone number)

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