Evie is the 2 year old daughter of Aimey and James from south London, UK.
When Evie was born, she had the cord wrapped around her neck twice. During the final stages of labour she suffered significant trauma and subsequently suffocated, leaving her with brain damage.
Then, when she was just a few weeks old, Aimey and James were hit with more bad news. Evie had Retinoblastoma (a type of cancer) in both eyes. She was rushed to hospital and had to undergo chemotherapy to try to save some of her sight.
Evie is now 2 years old. She has cerebral palsy, as well as the retinoblastoma.
When I contacted Evie’s mum this week, Evie was in the process of having chemotherapy and her mum was dealing with the fear of her going blind or having to have her left eye removed.
I asked Aimey how we could help, and she told me about a DIY project she is desperate to complete.
She wants to turn their little wooden shed into a sensory room for Evie. She has insulation boards and a wonderful sensory board built by a family member waiting to be fitted. But she needs the help of skilled professionals to put her plan into action. It would need some building work, some electrical work (running electricity cables so there are power sockets to plug-in sensory toys) and some artistic painting to bring the sensory board to life (it will be based on a page from Evie’s favourite book, Barry the Fish with Fingers).
Time is running out to make the most of Evie’s vision while she still has it. The family has raised funds to buy the supplies for the sensory element of the shed, but due to tax reasons they are not allowed to pay for building works.