This week, we would like to help a family from Nottingham, UK - Sarah and Andrew Dawkins and their twin boys, Freddie and Louie.
Until the age of two, Freddie and Louie were like any other healthy, energetic boys. At age 2 they were diagnosed with autism, and by the time they were 3 they were both blind, despite having been born with perfect sight.
After months of testing, they were diagnosed with Late Infantile Batten disease. It is an inherited neurological disorder which emerges in early childhood. The condition leaves youngsters blind, bedridden, and mentally impaired and the life expectancy is between 8-12 years. There is no known cure.
Freddie and Louie are now 8 years old. Sarah, a trained nurse, and Andrew, a furniture maker, have left work to care for their gorgeous boys. It is hard, and it will become even more challenging as the children’s health and abilities continue to deteriorate. But they are trying to make the most of every day they have together.